Update on Evan

Jul. 21st, 2017 11:29 am
mayalaen: (Default)
[personal profile] mayalaen
I went to visit Evan last night. He's doing REALLY well. His left eye is horribly bloodshot, but he's already able to see out of it even though he had an orbital bone fracture.

They did a surgery Monday to place some mesh to stabilize the bone, and he's wearing a patch to rest the eye, but he can already see out of it, which is pretty awesome only a few days out from an orbital fracture. It's a little blurry, but already improving. His right toe was broken, but they set it and he's not having any pain from it. His recent incision (knee surgery) opened back up in the accident, but no other damage was done to that right knee!

His left hip is fractured in multiple places, and day before yesterday they did another surgery to put in a plate and screws, which was very successful, and yesterday he was able to transfer himself from the bed to the recliner, which was what they were waiting for him to do before allowing him to move to a rehab center, so he should be moving in the next few days as soon as it's all arranged. It was a 100-mile round trip to go see him, so hopefully he'll get moved soon!

He's in pain, but he's a very stubborn kind of guy who has a very strong will, so he's already doing more than they said he could do and he's ready to hit rehab hard!

He explained the accident to us and it was very odd. One of those freak things. He was on a highway going 75-80 (speed limit is 75 even on 2-lane highways here) and a pick-up truck towing an SUV was going the opposite way. The cable let loose on the SUV and it went across the median.

Evan had the choice between hurting other people or just hurting himself, so he stomped on the brakes instead of veering into oncoming traffic or going into the other lane going his way and sideswiping the other vehicles going his way. He didn't have much time to slow down and the SUV heading for him was going pretty fast too, so his car is totaled.

One cool thing about all of this is that he has been having trouble with a pinched nerve in his neck ever since he had the knee surgery. It was causing the right ring and pinkie fingers to go numb and causing pain all throughout the arm and neck. Ryan and I were joking the other day that it would be cool if the accident fixed that, so I asked Evan about it, and would you believe the accident fixed the pinched nerve? He can feel his fingers again and there's no tightness or pain in his arm or neck!

They expect him to be in rehab for a couple weeks, and for a week or two after that they want him to take it easy, but he's claiming he's going to be back to work in 8 days. Stubborn dork :D
mayalaen: (Default)
[personal profile] mayalaen
Evan called me from the hospital today. He was in a car accident yesterday. He broken his left orbital bone (the bone around your eyeball), fractured his hip (I can’t remember which one) in multiple places, reopened his recently closed incision on his knee (he had surgery on both knees, the left one more recently), and totalled his car.

His phone was destroyed, so he called me on his girlfriend’s phone and she later sent me pics of the car, which… it looked so awful it made my stomach clench. Head-on collision. Evan was not at fault.

He’ll be in the hospital for a week, will need multiple surgeries, and after that he will go to rehab for a week or two.

His girlfriend was worried I’d kick him out and rent his space out to somebody else, so I reassured her that he’s awesome and there’s no way I would do that.

So not only have we got Ash, who was in that horrific accident last year, and now we have Evan doing major damage, but last weekend Ryan’s girlfriend’s father was killed instantly when a drunk driver (with many previous DUIs) hit him from behind at a stop light going 100 miles per hour, so Ryan and his girlfriend will be busy all week setting up funeral arrangements.

Could my guys please stop getting into accidents? My blood pressure would appreciate it! We’re going up to see Evan tomorrow, and I know Ash was heading up to see him tonight. Evan said he’ll send me “really cool pics” of what happened, which means he thinks what happened to his body looks cool and gory, so he’s going to gleefully send me pics :D

It’ll match the pic Ash’s girlfriend sent me of him in the hospital last year with his hands only attached by some ligaments and his torso open to the air from the top of his sternum to the top of his pubic area.

I don’t need any more for my photo album! My guys can stop getting hurt now, please!!

Methods of Treatment

Jul. 17th, 2017 07:27 pm
mayalaen: (Default)
[personal profile] mayalaen
I have drug-resistant Paranoid Schizophrenia, and I hallucinate with all five (and more) senses. Drug/Treatment-Resistant means that medications like antipsychotics don't stop my hallucinations. In fact, in my case they actually make them worse.

I'm self-aware and high-functioning, but I have psychotic episodes that will last a long time if not treated, the longest being 5 years. When I have psychotic episodes, I tend to switch to Catatonic Schizophrenia, which isn't quite what it sounds like, and if you'd like more information, please click on the link.

I've been on more medications than I can count over the years, but the last time I compiled a list, it was over 40. At times I was on as many as 9 different medications at one time, none of which helped much, and most of which made me worse in some way and caused intolerable side effects such as brain and nerve damage, hypersomnolence, and many others.

So I went in search of alternative treatments, the first of which being something I've been on for 8 years now, which is Wellbutrin/bupropion. It's an SNRI (not an SSRI), and after doing a lot of research and for various reasons (which I'll probably go into more detail about at a later date), I decided it would work, and it did once I found a psych doc willing to prescribe it to me. Keep in mind this is a medication doctors WILL NOT normally prescribe schizophrenics! Yet it has worked wonders on me.

However, it didn't stop me from having breakthrough psychotic episodes -- about 1-2 per year. So about a year ago I started my search again.

For a few months now, I've been using THC gummies/edibles as a treatment for my schizophrenia. THC is a natural antipsychotic, antianxiolytic, and has many good properties. Read This Article to see some studies about it.

I've tried everything from 2.5mg all the way up to 120mg of THC per dose. For reference, the average joint is anywhere from 10-50mg (they may say there's more THC in there, but only 10-50mg is actually ingested).

In that time I've learned some things about how THC effects schizophrenia, anxiety, paranoia, psychosis, hallucinations, and daily life.

First of all and most important to me, there's no obvious nerve damage and so far there hasn't been evidence of brain damage even in studies where ridiculously high amounts of THC was used, including 1000-1200mg of THC per dose given daily.

Second, it's the only thing that has stopped my hallucinations. Within 1.5 hours, even at my worst, THC stops all hallucinations. It brings my paranoia level down to almost none. My cognitive function is greatly improved, as is my concentration and memory. My auditory processing improves, and my social skills improve slightly as well.

My sleep patterns improve, and instead of sleeping anywhere from 1-5 hours a night or not sleeping at all for days at a time, my sleep pattern regulates somewhat and I get a regular 5-6 hours at roughly the same time every night.

My clumsiness improves, my facial expressions improve (schizophrenics tend to lack facial expressions and gestures), and my ability to tolerate noises and humans improves greatly, especially children.

The only problem I'm seeing so far is that I can't stay high 24/7. I own a business, and it takes a lot of my time and mental energy, so I've been taking about 30mg of THC on Saturday night (the first night of my weekend) only. I'm not able to drive or work on this dosage, but it only lasts for about 18 hours, so by the time I need to get errands and household chores done on Monday, I'm completely sober again.

This brings up another issue. Something I didn't expect, but really should have. I've had schizophrenia since I was 2 years old, and I became accustomed to hallucinations very early on. I'm self-aware, and most of the time I can tell the difference between a hallucination and reality. The times I can't, friends and family are awesome enough to let me ask and they'll calmly inform me whether what I'm seeing/hearing/tasting/smelling/feeling is real or not.

But in the 18 or so hours I don't have hallucinations due to the THC in my body, I get used to a lack of hallucinations way too quickly. That means that when it wears off, I have a hard time acclimating to the hallucinations coming back. I'm more jumpy, I "forget" to ignore the noises/voices, and it takes me a day or two to get used to it again. That's not necessarily a bad thing, but it is a concern.

In the six months I've been using THC on and off, I haven't had a psychotic episode, and it has twice stopped one from coming on. I had all the symptoms of one coming on (noticed by me, my family, my friends) and yet after one dose, it backed off to normal levels. Previously I had to use 8-week courses of antipsychotics to "reset" my brain and stop the psychotic episode.

The medical community doesn't want to look at THC as an alternative treatment. They won't even consider the fact that antipsychotics aren't the best treatment for schizophrenia. They use medications that cause brain and nerve damage just because they don't know what else to do with us, and they feel the damage is worth the risk.

That means research into alternative treatments suffers, and that means medications aren't being produced that take advantage of these findings. Instead schizophrenics are being heavily medicated until they're drooling. On the other hand, many schizophrenics refuse to take any medication at all because the only things offered to them are more horrible to them than the disease itself, so they're left suffering through whatever symptoms they have to deal with on a daily basis.

Hallucinations don't upset me. I've lived with them all my life. My goal isn't to rid myself of them, and I couldn't care less if someone feels it's not "acceptable" and I should be medicated so they don't have to be exposed to it. My concern is cutting down on psychotic episodes and making my life more stable and easier to manage.

What I've found so far is working, and I hope one day soon the medical community takes the stick out of their ass and does something about making THC or the properties of it into a medical treatment somehow, especially one that doesn't get people high so they can work and play the way they want to.
majestic_duxk: (Default)
[personal profile] majestic_duxk
What's been going on for the duck? Not a lot.

Still looking for work, although I am feeling more hopeful on that front, and I am also applying for some volunteer positions (there's an interesting one in East Timor, and I am going to go through the AusAid website and see what else a) suits my current skills but b) could expand them) and I am also applying for a few masters degrees,so we shall see, we shall see :)

For those not on my fb, I came across this writing comp and it is a ficlet comp with a MASSIVE first prize. Last year 35,000 people entered, so I don't feel like sharing it is going to affect my chances XD (I mean, I would share anyway, but I found that amusing).

One of my sisters comes on Wednesday for a month long visit. I am sure it will be fine: interesting punctuated with Extreme Stress. She's super bossy at the moment for some reason, so that will be interesting.

I also got her to join my GISHWHES team, so I have two sisters on my team this year, and 4 friends in total!~

... I mean 4 people I know, cos most of my teammates are my friends <3

Still struggling to focus on writing, and while I got my TFWBB draft in, there is still WRITING today. Posting doesn't start until september, so there is time... but I would really like to get it done. At the moment I dont' know if it is good or not, I need to finish to see.

I'm not writing that much full stop! the last thing I posted was my spn_j2_bb fic. I was going to stay up and write... but basically I need to get my butt out of bed earlier so my brain switches on earlier. Also, at night I am all... if I go to bed now, I might have a snuggle dog to sleep with. I am so easily influenced by dogs.

so yeah. things are tripping along rather nicely.

I hope everyone is doing well <3

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